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Stoney

Bees and babys.

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My 6 yr old son suffered anaphylaxis last October following a bee sting at home, it was his 3 rd sting with the first 2 being on his feet off the lawn (kiwi as) with no real reactions. 

Yesterday was his first day of the RUSH treatment at CH CH hospital, the plan was 5 stings 1 hr apart starting with a dose of 1/1000 of a full hit. 

Everything went well up till the last dose.. 15 minutes following it he developed a tiny cough, concern was noted and coughing was timed by the fantastic team of nurses.. 

increased cough timing was the only symptom, heart rate remained the same as pre treatment hours earlier. 

We were then seen by the specialist by which time Caleb had become wheezy. 

Within 30seconds of the wheezing he had the adrenaline needle hanging out of his thigh.. damn. 

This kicked things up a gear with us bundled into a single room, hooking him up to monitors etc, all pretty scary for him who moments earlier had been quietly watching dirt bikes on the I Pad. 

With no decrease in his wheezing a 2nd shot of the good juice was delivered, followed by me spending last night in the chair beside his hospital bed... thinking about my chosen path in life.. 

 

All his early life I had been pretty casual about my bee suit in the house, I work gloveless and if hot have my sleeves rolled up meaning the venom both on my skin and leaching out in my sweat he was exposed to. 

Also the dried venom on my suit being spilt into the house as a fine powder to be breathed in. 

Also washing my filthy suit in the house machine with other clothing on the odd occasion. 

There is a high number of beekeepers kids doing this program.. this isn’t a coincidence. 

Bee venom can kill, think about that.. 

think about the exposure you may be giving your wee ones or even grandkids..,

their wee bodies can build a really strong reaction to the venom you can’t see on you or your gear and no one will know until that sunny arvo on the lawn kicking the ball around and you get caught holding a big filthy surprise. 

 

Epipens in an easy spot, 

beesuits not in the house, 

beesuits soaked and washed with  the hose outside, 

wash/ change before playing with the wee ones. 

Just some small snippets of advise from someone that found out the hard way. 

 

 

 

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Thanks for the heads up, there’s lessons for all of us in your story. Glad things worked out for your young fella. 

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It's great to see that you've come up with solutions and haven't decided on a complete career change because of what has happened to your child.

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Excellent post @Stoney, while I 'liked it', would also have put a 'sad' and 'thanks' if it was possible. Will put much of it into our bee groups next meeting notice - as timely reminder.

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@Stoney do you mind if i link/share this elsewhere?

thanks for posting, best wishes to you and your whanau

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Our kid had couple years ago reaction to be sting, rush also. He also got treatment at emergency. Prior to that he had stings from bees, wasps without significant reaction - just swelling. I was also crushed, cause he liked the bees and had endless questions about bee life, queens, etc.. Now he avoid anything about bees. I heard in teen age all can be change, the immune system may reprogram and lose allergy to bee venom. Anyway we planned to do testing for our kid on allergies, and will see what is situation with that.

I had long time ago reaction to wasp sting, also rush and had to get emergency treatment.. After that I've been stung by wasps with only swelling..

About my bee suit, kit and rest he didn't show any reaction. Maybe I should observe more carefully, will see..

Not little people I heard die of bee sting, unfortunately kids also. Even some long time beeks developed allergy reaction and died, as I heard.

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Hi stoney, I've got a 2 year old and a 12 year old, and had bees for 6 years now. I've been quite cearfull with gear etc. Any idea of introducing venom (getting stung) to the little one, she hasn't been stung yet and thought introducing it to her system early might reduce the risk of sensitivity in the future.

I realise this is a question for a doc, but did they mention anything like this. 

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UhHuh . Anaphalaxsis is scary stuff that seems to take out people indiscriminately.

We have a washing machine in the workshop for overalls and stuff..... mainly because the washer woman got grumpy about forever cleaning out matches, wax crayons and cell cups from the house machine. But it neatly seperates work from home.

Will you carry on with the treatment Stoney.  When reading your post, it seemed like the treatment was quite quick. I was under the impression that the process took a couple of months of gradually increasing the dose rate .

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10 hours ago, jamesc said:

UhHuh . Anaphalaxsis is scary stuff that seems to take out people indiscriminately.

We have a washing machine in the workshop for overalls and stuff..... mainly because the washer woman got grumpy about forever cleaning out matches, wax crayons and cell cups from the house machine. But it neatly seperates work from home.

Will you carry on with the treatment Stoney.  When reading your post, it seemed like the treatment was quite quick. I was under the impression that the process took a couple of months of gradually increasing the dose rate .

Definitely continue, next Thursday is next attempt.. 

this is the new RUSH treatment.. obviously being so sensitive to bee venom we will have to revert to the “old” way. 

One part sting per week building up to a full dose over a few weeks. 

RUSH was 5 stings day one and two totalling  a full sting dose each day then weekly then monthly for 5 yrs. 

whole program still will be over 5 yrs

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10 hours ago, Mitch said:

Hi stoney, I've got a 2 year old and a 12 year old, and had bees for 6 years now. I've been quite cearfull with gear etc. Any idea of introducing venom (getting stung) to the little one, she hasn't been stung yet and thought introducing it to her system early might reduce the risk of sensitivity in the future.

I realise this is a question for a doc, but did they mention anything like this. 

I understand why you would want to do this however if I was you I’d still consult someone in the medical trade... 

definately buy an epi pen for home. 

I cant stress this enough.

Their wee bodies don’t handle the hit like our wrinkly weathered leather skin does... 

the signs can be minute as in my boys case.. only a slight cough.. very hard to miss when at home. 

We live a wee way from help too. 

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14 hours ago, Goran said:

 

About my bee suit, kit and rest he didn't show any reaction. Maybe I should observe more carefully, will see..

I believe the dried venom coming in contact with them through both breathing into lungs and also externally on the skin causes their bodies to build a huge defence reaction and then suddenly when the venom is pumped into there body through a natural sting it goes into a big over the top defence reaction causing anaphylaxis. 

Theres a large number of beekeepers kids allergic (anaphylactic) . 

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I have tried to be super careful with my baby, I bought a new washing machine and it will never see a suit washed in it.

Suits are kept at mum and dads in the basement.

I no longer have hives at home.

And we don’t cuddle her when wearing a beesuit, and wash our hands.

Other than that I’m not sure what you can really do 🤷‍♀️ 

It is so unfortunate that so many beekeepers kids develop allergies.

 

If we end up with a commodity levy this is the sort of thing I would like to see some money thrown at, hopefully there will be a way of preventing this happening to more beekeepers children.

 

Good luck with your boy, it must be such a horrible thing to have to go through with a little one.

 

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It’s weird how exposure causes problems in some areas and reduces in others. Another big cause of anaphylaxis is peanuts, and someone noticed that Israel has a relatively low rate of reactions. They also have a popular children’s snack full of peanuts, which seems to be helping.

 

https://www.npr.org/sections/thesalt/2015/02/23/388450621/feeding-babies-foods-with-peanuts-appears-to-prevent-allergies

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6 hours ago, cBank said:

It’s weird how exposure causes problems in some areas and reduces in others. Another big cause of anaphylaxis is peanuts, and someone noticed that Israel has a relatively low rate of reactions. They also have a popular children’s snack full of peanuts, which seems to be helping.

 

https://www.npr.org/sections/thesalt/2015/02/23/388450621/feeding-babies-foods-with-peanuts-appears-to-prevent-allergies

I have a niece that was never allowed eggs, nuts and the like until she was 2.

she has life threatening allergies to all nuts and even things like seaseme seeds. 

I do wonder if early exposure to foods and germs helps reduce the chance of severe allergies.  perhaps it’s what @Stoney was saying about micro exposure causing the body to overreact with full doses. 

My kids certainly were exposed to all kinds of germs, ate all sorts of foods (including dog biscuits and sand)  and they’re  all very healthy. 

 

 I wouldn’t wish life threatening allergies on any family, the stress of daily life must be immense. 

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3 hours ago, nikki watts said:

I have a niece that was never allowed eggs, nuts and the like until she was 2.

she has life threatening allergies to all nuts and even things like seaseme seeds. 

I do wonder if early exposure to foods and germs helps reduce the chance of severe allergies.  perhaps it’s what @Stoney was saying about micro exposure causing the body to overreact with full doses. 

My kids certainly were exposed to all kinds of germs, ate all sorts of foods (including dog biscuits and sand)  and they’re  all very healthy. 

 

 I wouldn’t wish life threatening allergies on any family, the stress of daily life must be immense. 

I got told to give peanut butter before 1, but to put it on her cheek and wait a day to see if there’s a reaction before feeding it

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48 minutes ago, Daley said:

I got told to give peanut butter before 1, but to put it on her cheek and wait a day to see if there’s a reaction before feeding it

Sounds like you’re doing everything right. 

My oldest is only 17 but it sounds like allergies are more common these days. 

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50 minutes ago, Daley said:

I got told to give peanut butter before 1, but to put it on her cheek and wait a day to see if there’s a reaction before feeding it

I don’t even remember any allergy warnings. 

We just feed the kids whatever we were eating. 

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4 hours ago, Daley said:

I got told to give peanut butter before 1, but to put it on her cheek and wait a day to see if there’s a reaction before feeding it

 

When they are one and you give them food to eat, the portion that actually goes in the mouth is rather small. 

 

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Long time ago I talked with one man whose kids had plenty of allergies.. Doctors told him that kids should consume goat milk daily and up till 1,5 years old had result on reducing of allergies. On the other hand, I think also isn't advised for the babies to consume goat milk before 8-10 months old.. So it is relative narrow window.. He told me that his kids were lot older when he talked with doctors, I think some 4-8 years. He said, he gave kids goat milk and after 6 months at one kid variety of allergies reduce from 16 to 8.. So is it due goat milk,  who knows.. But since goat milk is healthy, and if someone has goats, why not..

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Some people won’t give cows milk or gluten.

Haha Riley has weetbix and milk almost every morning.

The food goes in if I feed her, less goes in when I let her feed herself 😂 but it’s more about her learning co-ordination to eat

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I have a lot of friends with children with food allergies, they are healthy people who eat well for the most part.

Sometimes it’s just bad luck.

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P

1 hour ago, Daley said:

Some people won’t give cows milk or gluten.

Haha Riley has weetbix and milk almost every morning.

The food goes in if I feed her, less goes in when I let her feed herself 😂 but it’s more about her learning co-ordination to eat

05F179D4-3E44-4AEE-9E5C-C891043D3731.thumb.jpeg.67f8ced367bff4e3a0a9cf7bae42cee7.jpeg

 

I have a lot of friends with children with food allergies, they are healthy people who eat well for the most part.

Sometimes it’s just bad luck.

eating at that age is an old round sensory experience.

Touch , taste , smell, sound , sight.

Our dog used to spend a lot of time below the high chair .

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4 minutes ago, kaihoka said:

P

eating at that age is an old round sensory experience.

Touch , taste , smell, sound , sight.

Our dog used to spend a lot of time below the high chair .

Ours too

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36 minutes ago, frazzledfozzle said:

Was there even such a thing as food allergies back in thd day ?

Yes I had a very bad reaction to broad beans, Brussel sprouts, big floury mushy peas. I used to gag, choke, dry reach. Fortunately I married a fine Las that cooks better than my mum and the condition has resolved itself.

Amusing situation- my children seem to have inherited the same condition 😂

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Hah dansar it was the same stuff for me!  Broad beans, brussel sprouts, peas.   For my kids we eliminated trying to feed all that stuff ---=> a lot less pointless suffering.  

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